Our Purple Angel Memory Cafe Thomston brings so much joy to me. In January 2015, I started my first memory cafe. At our first cafe, we had eight people. The second cafe, there were twelve people. Yesterday, we had twelve people again. Four other people were not able to be there due to conflicts. At every cafe, there are new people showing up. People are crying out for help and social interaction. They want to now that they are still loved and valued. These are two basic emotional needs that are too often missing in our society today.
People are crying out for help because our healthcare system has failed. So many times, I hear someone tell me, "I went to the doctor, he told me I had dementia, gave me a prescription for Aricept, get your affairs in order and come back and see me in six months. Often times, they are told nothing else. When I hear these comments, many questions come into my mind. I will cover a few of these in this blog.
It appears to me that healthcare providers jump to the final chapter. Only God knows when the final chapter will be written. Until then, our healthcare system needs to provide better education and resources for the person with dementia (PWD) to have a better quality of life. Receiving a diagnosis of dementia is devastating. Plans that have been made for one's life are often shattered. With no resources or guidance in-hand is frustrating. I have chosen not to be a "stastic", but to fight for all PWD. They deserve the best.
There are three main questions that come into mind. "When will our healthcare system realize there can be years of quality life, especially when the diagnosis is early". When will more physicians learn how to communicate and interact with a PWD?" "When will they provide resources to the patient at the time of diagnosis?"
The emotions of being giving a diagnosis of dementia must be calmed before the PWD can ever start to have a better quality of life. As long as I am physically and mentally capable, I will never stop fighting for those of us who have dementia.
©2015 Robert Bowles
Robert Bowles, Jr.