Two nights ago was the first restless night, lasting all night long that I have experienced in the four years of having Lewy body dementia (LBD).....realizing many times during the night the restlessness was occurring but never fully waking up. This morning was complete exhaustion. What do I do when this occurs? Take it ease, take it easy, and take take it easy. Time for recovery is essential. So, what am I doing today? Taking time to play with my 8 year old granddaughter, Morgan. She always lifts my spirits when she spends time with her JuJu and PaPa.....playing UNO and just peace and quiet.
Living with LBD rarely provides a vacation from Lewy where there are minimal if any symptoms taking place. Likely because LBD is a multi-system and complex disease. There are 1.4 million people in the United States living with LBD, making it the 2nd most common type of dementia.
(1) The cerebral cortex, which controls many functions including information, processing, perception, thought, and language.
(2) The limbic cortex, which plays a major role in emotions and behavior.
(3) The hippocampus, which is essential for forming new memories.
(4) The mid-brain, including, the substantia nigrea, which is involved in movement.
(5) The brain stem, which is important in regulating sleep and maintaining alertness.
(6) Brain regions important in recognizing smells (olafactory pathways).
What symptoms do we see take place?
(1) Visual hallucinations early in the course of dementia.
(2) Fluctuations in cognitive ability, attention, and alertness.
(3) Slowness of movement, difficulty walking, or rigidity (parkinsonism),
(4) Sensitivity to medications used to treat hallucinations.
(5) REM sleep behavior disorder, in which people physically act out their dreams by yelling, flailing, punching bed partners, and falling out of bed.
(6) More trouble with complex mental activities, such as multitasking, problems solving, and analytical thinking, than with memory.
(7) Nightmares and delusions may take place.
(8) Other things that may be seen in LBD are Repeated falls and syncope (fainting). Transient, unexplained loss of consciousness. Autonomic dysfunction. Hallucinations of other senses, like touch or hearing. Visuospatial abnormalities. Other psychiatric disturbances. - See more at: http://www.lbda.org/content/symptoms#sthash.itsWBiYc.dpuf
(9) Symptoms may fluctuate as often as moment-to-moment, hour-to-hour or day-to-day. - See more at: http://www.lbda.org/content/symptoms#sthash.itsWBiYc.dpuf
Fight Like a Tiger ---- Be LBD Strong
©June 4, 2016 Robert Bowles
Robert Bowles, Jr.